Skip to main content

I have just recently had surgery, due to ulcerative colitis. I had a complete colectomy with ileostomy. We have scheduled the J-Pouch surgery for may 31st but I have been doing some reading and am having mixed feelings about it.  The reason is that, after the surgeries for J-Pouch, my husband and I plan on having a baby.  Now I know that it can be hard to get pregnant after the surgeries.  My husband has fertility problems of his own so we are already working with IFV of Michigan so I'm not worried about not being able to get pregnant.

My concern is carrying a baby with the J-Pouch, I've mostly seen positive feedback when searching online.  I've seen that some carry more on one side than the other, but that had no effect on baby's growth.  I also know that it would most likely be c-section. I will be working with a high risk pregnancy doctor.  My main concern is something called "Pouchitis".  I was reading about it and it honestly made me not want to get the surgery at all.

So I'm trying to decide if I should get the J-Pouch first, then have my pregnancy.  Or Have my pregnancy with the bag and have the surgery for J-Pouch in a couple years instead.

Any/All opinions would be greatly appreciated.

Thanks so much.

Last edited by faljes
Original Post

Replies sorted oldest to newest

For most J-pouchers pouchitis is an occasional nuisance, easily dispatched with a short course of antibiotics. In all likelihood it wouldn’t occur at all during your pregnancy. For a small number it can be more troublesome, though, and when J-pouches fail it’s most often from pouchitis that can’t be controlled. If you want to get rid of an external bag then a J-pouch is a fine choice. If you’re happy with the bag then you can save yourself some surgery.

I had a one stage surgery to remove my colon and do the j pouch back in 2011 and i have chronic pouchitis that i manage with antibiotics. I got pregnant in 2014 on our first try (I was amazed) and had a healthy baby boy in 2015. I pretty much chose to have a c-section just because i was worried about messing up my pouch or getting a bad tear or something.  The docs said I would be fine with vaginal delivery, but I didn't want to chance it.  Anyway, my son will be 3yo in July.  I saw you continue as you would normally and just keep seeing the hisk risk OB.  I did that as well and loved it because I got to "see" my son much more frequently than if I had the normal OB.  BTW, I was also 38yo at delivery.   Best of luck to you and PM me with any questions. I'm happy to help if I can. 

I had my colon out on an emergency basis due to UC in 2006 then had the j-pouch surgeries in 2007 once I had been off of prednisone long enough to undergo a major surgery. 

I had a couple of bouts of pouchitis in the first two years following surgery, which responded immediately to 2-week courses of antibiotics. I then researched probiotics and have been taking them religiously ever since, and have now gone 9+ years without any incidences of pouchitis. I took Garden of Life Primal Defense the first 7 years and the last couple of years I alter between the same and the more expensive once daily women's probiotic by Garden of Life. I highly recommend taking a good, multi-strand probiotic as a preventative measure if/when you decide to get the j-pouch. I am very happy with my post-j-pouch life, but I think the probiotics is a big part of keeping it healthy. 

We recently discovered that I am pregnant! I am now in the midst of figuring out what to expect with a j-pouch pregnancy, but so far, so good. If anything so far, the j-pouch version of pregnancy constipation means I usually don't have to get up to use the restroom in the middle of the night (as I normally would have to when not pregnant) and I can fart (which normally I can't). 

One thing I would wonder about, in your case, is if the doctor would recommend a waiting period to get pregnant following the j-pouch surgery, or if it might be harder for your body for a certain period of time after since it is a major surgery. 

Add Reply

Post
Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×
Link copied to your clipboard.
×