Newbie looking for anyone with ileorectal anastomosis?

Hi! I realize this is a J pouch group; however I can't find anyone with an ileorectal connection as I had my loop ileostomy takedown, colon removed then connected to rectum at Cleveland Clinic on 12/12/16. The doctor decided after defecography that attaching my small intestine to rectum would be viable. I need help because my rectum turns the contents into burning "mucus poo" I have to push out. Sometimes after certain foods I can get liquid or both. I have to use a catheter meant for cleaning out an ostomy and "flush" out nightly to keep the rectum from getting distended. The closest thing or people I can find to what I have are j pouchers. I have you tubed butt burn and am trying to cope. Please if anyone has an ileorectal anastomosis please help with questions. I have quite a few. Currently at Cleveland Clinic for post op as I live close to Cincinnati. The surgeon and WOCN nurse don't have any suggestions as this isn't a common procedure from what I understand. Help, please.��

Original Post

I have had anal anastimosis.. first surg 95 w total colectomy w R ileostomy. Few years later built Jpouch..nother few years.. reconnect all the plumbing to the sphincter. .where your fresh at 2016..yeah learnin how to push takes some time. Some of that is learnin to trust your sphincter lol. The burn is acid for sure..destin works great..drinkin plenty of water to dilute the acids helps.. what what you eat chemical wise it will have a not so pleasant side effect.. as for using a cath.. I can not say I used one.. sometimes usin an index finger ..get familiar w your new rectum lol..sometime there is a dip or pouch (very small) to ine side or anither and things can get stuck there. Might have to "scoop the poop".  I am more than happy to help w any info and or experience with this as I can. I had my anal anastimosis in houston at the colon n rectal clinic.. Dr. Baily n Dr. Butts (not kidding) did mine they are the ones that developed the surg.

Thank you for responding! I'm still getting familiar with terminology. Do you still have your rectum? They took out my colon, left rectum; hence ileorectal anastomosis. Now  when I go to sleep my output gets so thick almost dehydrated I literally can't push it out in the morning. I go pretty well all day from thick to thin. Any suggestions on how to go in the morning? Does this happen to you? Thank you~Jen

jen, I answered ya in a PM (private message). I will say ....not almost dehydrated, We are dehydrated just from having no large intestine. our biggest task is keeping hydrated and electrolytes balanced... the large intestine does so much (other than make us miserable lol).  I'd start with increasing your water intakes and do so through out the day.

Very few members here have an ileorectal anastomosis. The vast majority have an ileoanal. That said, the ileal j-pouch performs similarly to a rectum. With a rectum, you should have less problems emptying, not more, since the rectum has muscles that the ileum doesn't.

Anyway, some of us do have emtying problems and nightly enemas or drainage by tube can work.

As mentioned before, stepping up your fliuds may help. Fiber supplements may also help you empty by adding more bulk to your stools.

Jan

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