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Hi!

I had my final jpouch surgery a year ago this month. Around February I started experiencing lower and upper back pain, followed by a weird feeling or taste sensation in my mouth along with feeling a little yucky. I also experience achy body/joints and tiredness. Someone suggested to me my symptoms and jpouch might have a correlation. Possible leakage??? Has anyone ever experience a leakage? What was your experience? 

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I never had leakage other than out.... Well where it should come out.  But I did and still do experience some very painful joints and tiredness.  Most have gone away except for the hip joint pain which I still experience but only after being a sleep a few hours.  The only way to relieve it is to get up and move.  But most of the other joint pain has disapated over time.
I still tire but not as quickly as I used to but all of this I associated to having my colon removed.  I never had any of this pain before.  I had two open and one laproscopic  surgeries.
Now if your pouch is leaking internally... Or you think it is.... that is something that has to be tested. 
What makes you think it is leaking?  I would think that would make you very sick and do it very fast.
I don't know.
Maybe Jan will give some advice.

i had on and off back pain for a few months, then started getting electrical zaps down my legs. One morning i woke up and couldnt get out of bed. drove my ass to ER and did CT scan and discovered i had a very small leak in tip of jpouch that was leaking into my spine and i had a spinal infection. immediate diversion that night and alot of antibiotics

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