My best friend's daughter has UC and a J-pouch that keeps falling out. Has anyone else experienced this?
I think what you are describing is pouch prolapse. If you do a search using that term, you'll find many references to it. It is an uncommon complication.
I am living with a pouch prolapse. Had surgery to correct a flap protruding from pouch, thought it was fixed but not, and now they agree it's actually pouch that is prolapsing, not the mucousal lining. Apparently mine is minor and only prolapses an inch, so surgeon not recommending surgery at this point. It causes difficulty emptying pouch but I'll wait to have it corrected with full pouch redo when it becomes more pronounced or does not retract. Unfortunate complication. Hope hers is manageable or she has good surgeon to correct situation.