Have you got more autoimmune diseases than Colitis?

Well please educate yourself, before sugar people didn't have these problems......since sugar guess what?

why are other countries not as sick as the westerners?? SUGAR. 

As far as leaky gut. The research is there. In all my doctors appointments they never talked about diet. It's been my new crusade to inform sick people about how the fork is killing the westerners. 

Why are we so sick and they're not?? 

Scott "how not to die" is just the name of the book. Gregor great read if your sick or know smbdy that is please please please read it. It just educates us as to why we are so sick. It explains which herbs and veggies and fruits benefit certain conditions. 

Tc posted:

Well please educate yourself, before sugar people didn't have these problems......since sugar guess what?

why are other countries not as sick as the westerners?? SUGAR. 

 

There are all kinds of environmental reasons why these problems might've previously been more prevalent in certain areas and populations than others. I read an interesting article about it last time I was at the GI's office (abstract below -- clicking will lead to an error, the whole line must be copied and pasted):

http://www.thelancet.com/journ...rticle/PIIS0140-6736(17)32448-0/abstract

It questions whether industrialization and urbanization are the cause. When I asked one of the GI trainees -- whose academic pedigree is impeccable -- what he thought of the Lancet article, he chuckled and said "First you have to understand that just because these diseases are becoming more commonly diagnosed in Asia doesn't mean IBD hasn't existed there for decades and that patients didn't suffer because doctors weren't familiar enough with it to recognize and treat it." I thought that was an interesting point.

Other studies have questioned if sanitation practices play some role. It's simplistic to preach that it's all about diet. It's also insensitive at best, and antagonistic at worst (and I'm not saying you fall into this category, but there are many "wellness gurus" who do), to make sweeping suggestions that -- inadvertently or not -- tell patients with poorly understood chronic illnesses that we're essentially responsible for our own suffering. These suggestions often come from people who are well-meaning, but intent doesn't dictate how those words are received.

What works for one person won't work for us all. The staggering uniqueness of autoimmune diseases is one of the things that makes them so difficult to diagnose and treat. I'm always curious about dietary anecdotes, but never forget that there's nothing scientific about the vast majority of them. (For example, an outcome one attributes to diet could actually be the result of naturally recurring remission.) Heck, I was convinced dietary changes had turned my illness around once just because I felt marginally better at the time. My scopes told another story.

 

BOH......your already passed the point of no return (no colon) (me too). If I can help smbdy, anybody? Just read the book you may just get to keep yours longer. Medications are not always the answer, but can be counter productive while still eating the garbage. They didn't buy me anymore time. 

Thanks 

TC,

I live in France, a country that has built its reputation, tourist industry and just about everything else based on white flour, cream and sugar.

We have a very low rate of UC, obesity and gut diseases. Not that they do not exist (especially since fast food outlets like Mc D's and Pizza H and KC have moved into town) but they are substantially lower than what you find in the U.S.

We eat baguettes with white flour at every meal, rarely if ever use sugar substitutes (usually only the overweight people do here...which means that it is even rarer than you may think), have a much lower consumption of sodas and much, much smaller portions of everything.

WE do not SuperSize food, we Undersize it here...The smaller the better, the more refined the better (I used to think that they were giving out samples to taste and wait for the 'real ' meal to arrive only to discover that I had just eaten it in 2 bites. (no joke!)

They are huge coffee drinkers but seem to forget to add water ...again the smaller the better. Less is best. 

Most milk products like cheeses and yogurts used to be made with raw milk (we still find about 20%) which contributes to good gut bacteria and lower rates of gut disease...we have a lot less bacterial outbreaks than you could ever imagine. Better immune systems too.

So it may not be so much about what you eat but how you eat it, how it was grown and how much of it you eat.

I am learning. It has taken years. I eat small. Carefully. No gulping soda or slurping sugar but I do enjoy good ice cream (it is all good) and tasty pastries. They do not make me ill...They make me happy

As for the autoimmunes, I was born with them, did not acquire them...They are part of my genetic code. No sugar will not change that fact.

Sharon

 

TC, everyone's free to explore their own options. I just can't think of many things more dangerous and discouraging than telling vulnerable people who are extremely sick and scared (especially the newly diagnosed, who are extra bewildered and frightened) that they're contributing to their own illness, that science-based medicine offers minimal relief, and that all they need to do to feel better is practice potentially disordered eating (not all diets go that far, but some do) or buy the latest fad oils or do the hokey-pokey under the light of a full moon while chanting Dr. Oz's name. These days I encounter a lot of that on both IBD and AS support boards and understand why it gets people riled up.

It's true I'm past the point of no return with my colon, but I was also sickest at a time in history when treatment options were fairly limited. There has never been a better time to be diagnosed with IBD than today, and patients should feel empowered by that even if it's unfortunately true that some will still lose their colons. (And even then, their suffering might continue. My pouch and cuff remained inflamed and now I'm on Humira.) If they want to experiment with dietary changes, more power to them -- I just hope they're willing to give modern medicine a fair shake, too. My objection is to the abrasive tone of alternative treatment zealots.

The Hokey-pokey under the moonlight while chanting Dr Oz's name? 

Love it...could we maybe all stand in a circle naked pointing our bags, stomas and scars at the stars and see if that does us any good too? 

I tried it all...grapefruit diet (didn't work with my meds...Sent me into sezieurs), the 30 day nothing but boiling water-maple syrup-cayenne pepper and lemon juice diet (yes, I did it for the whole 30 days, that is just how desperate I was to get well), the no carb diet, the no sugar diet, the no "whites" diet (no white flour, sugar, fats etc)...the all protein diet, the no protein diet...whoever invented all of these diets should be locked up and have Hagen Daaz thrown at their heads!

Now I don't diet, watch what I eat, get vaccinated and pray to the Gods of ligaments, tendons and joints to still have the health necessary to live a good life.

Sharon

Wow! Thanks for the responses at least smbdy is reading my stuff

as for white bread in France? Wheat germ agglutanin? Is the real culprit, France and Italians don't use it bc it makes people sick. I'm not trying to confuse or harm anybody with false hope. But eating clean organic grass fed non-toxic is better to self than the alternative.

do the European use round-up? High fructose corn syrup? I don't think so? 

But like I said please read the books I've recommended and definitely follow doctors orders but eat better and stop eating sugar....ha

Actually, the Europeans do use round-up...they are discussing a ban in Europe right now but the law has not gone through yet.

Yes, our wheat is a different sort that has not been genetically modified (we sort of caboshed that one a few years back) and we are not a peanut butter and corn syrup kinda people but we have our share of dietary foul-ups.

I may or might agree with most stuff about eating clean (Lord knows that I do my best) but I have been around long enough to know that when you are ill, not a cold or flu ill but an Us kind of ill...chronic and very bad...you reach out to any theme, straw, book or witch doctor etc for a response or cure...And going extremist can cause more harm than good.

We are vulnerable, desperate for an answer and sometimes titering on the edge...panicked and in pain...for some of us this has come on very suddenly and within days or weeks, we have gone from 'innocente healthy and normal to colonless and near death...so being told that 'if only' we had read a book or done this or that will only make those in pain hurt more, guilt more and suffer more...it may also give more fuel to friends and family members who are not always very understand and like to tell us that it is somehow our fault or that we are not trying hard enough...they do not need help making us feel worse.

So, yes, thank you TC for the advice, I will look into it...but be kind to those who are not there yet.

Sharon

 

Wow! If you do the research child mortality was very high, which naturally drops the average, but if you lived pass 15, you likely made it into old age.....what ever old age is, which is certainly  older than 30. Stop eating sugar......

I am very very ill colon cancer, ostomy since 2006, now kidney failure, about to go on dyalisis, and hopefully kidney transplant list.....I'm fighting like hell to stay above ground and am thankful for every new day....I wish I was more aware of what I was doing to myself. Decades of abuse, now I'm hoping to help not harm........

Yes I deal with endometriosis, enteropathic arthritis (negative rheumatoid factor but presents like RA for me) skin issues. Been on Imuran for almost a year and CRP and sed rate are still really high. Rheumatologist blames my chronic inflammation on autoimmune disease

Yep--started with UC, then psoriasis, then psoriatic arthritis, and the worst one, endometriosis (which is controversial whether it is autoimmune since they still don't know the cause with certainty). For years I thought my "blah' symptoms were just from some remnant of the UC, but finally had a GP willing to get to the bottom of them. It's a frustrating existence isn't it? 

duck11 posted:

Yep--started with UC, then psoriasis, then psoriatic arthritis, and the worst one, endometriosis (which is controversial whether it is autoimmune since they still don't know the cause with certainty). For years I thought my "blah' symptoms were just from some remnant of the UC, but finally had a GP willing to get to the bottom of them. It's a frustrating existence isn't it? 

Hi duck11, what was your sympthoms from endometriosis? 

Best regards

Rikke

mac posted:

Yes I deal with endometriosis, enteropathic arthritis (negative rheumatoid factor but presents like RA for me) skin issues. Been on Imuran for almost a year and CRP and sed rate are still really high. Rheumatologist blames my chronic inflammation on autoimmune disease

Hi Mac, what symptoms did you have from endometriosis?

LoveLife posted:
mac posted:

Yes I deal with endometriosis, enteropathic arthritis (negative rheumatoid factor but presents like RA for me) skin issues. Been on Imuran for almost a year and CRP and sed rate are still really high. Rheumatologist blames my chronic inflammation on autoimmune disease

Hi Mac, what symptoms did you have from endometriosis?

Main symptoms were lower abdominal pain that was unbearable and excessive bleeding that would not stop. After over a year of Lupron and BC to try and trick my body into thinking it was in menopause I ended up with a hysterectomy. Still have pain at times from endometrial tissue and ovarian remnant syndrome but no where near as bad as before the surgery

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