Granulation/skin tag got ripped off

sharon

you are making me so excited to get the k pouch!!   simply can't wait.  

 

ge well, janet

that was 'be well'

Nice to hear you so excited...

Do me a favour and keep a notebook (or a sticky note on your cell phone) and take notes of every and all questions that you will have for you surgeon and the stomatherapist...make sure you ask them all...no point worrying about making a pain of yourself...it is your health and your body.

Have them show you exactly where you stoma is going to be, (you may need to buy yourself a whole new stock of unddies depending on what sort you where now...Certain ones make life easier with a stoma...once you have the indwelling tube out and need to cover your stoma you may find that the skin around it is very sensitive so if you cut in 2 a minipad and stick it to the inside of your unddies (you get pretty good at predicting where it needs to go) then you only need a folded up kleenex against your skin and don't have to tape anything onto yourself...so no adhesive on your skin)...little tricks.

You can start the countdown now...do your heavy grocery shopping now, fill your cupboards with nice, thick soups, tons of fluids that you enjoy etc.

Try not to have to go shopping for heavy stuff for at least a month post op...give your body some rest...

S

Am jotting down notes esp as concerns come up from reading posts on this site. Stocking up on food is a problem due to the low FOPMAP diet plus not eating sugar. Canned soups have problematic  ingredients. Will need to make soups etc ahead of time and freeze. Kitchen on 5th floor of house!  It's like I'm trying to make it more difficult.  Will get to Target for some new cheap undies for the event. Thanks for suggestions. How is the bleeding?  Under control I hope.  With a nod to your Paris address--saw La Bohme last night a wonderful production set in Paris during the 1968 riots. Very clever. Thanks. Janet

Janet, 

One of the things that I found really useful and yummy was frozen (all natural) vegetable purées.

They are sold here in the frozen food stores (not sure if you can find them in the supermarkets there) but they are 100% natural, no additives, not even salt.

They come in 1 kg (2lbs) bags filled with what looks like ice cubes...but they are the puréed veggies.

I liked green beans, pumpkin, carrot, squash or peas...I would nuke them and add some water to thin them out into a thick soup and then add whatever I felt like (usually a pad of butter or some grated cheese or olive oil) and spices...

They were my food base along with homemade mashed potatoes for the 1st month (I would eat a bit of chicken or fish as well).

Not sure where you can find them but check it out on the net....

Mini-pads, transpor tape (the anti-alergic kind) blue pads to protect your bed, something for the awful smell that eminates around the stoma while you have the indwelling cath (I think that it is the mucousy gunk that the stoma gives off while the tube is still in it)...

(I used essential oils or perfume on a gauze pad around it)...

You may not be able to tie shoe laces or put on pantyhose so prepare for Uggs or slip-ons, leggings and sweat shirts or sweaters.

If the kitchen is all the way upstairs then a thermal bottle or an insolated bag that you can carry on your shoulder downstairs helps. Avoid walking up and down stairs with your hands full, you need to hold onto a ramp...I stayed with my girlfriend in Toronto for all of my major k pouch surgeries between 2005-2009..she set up a loft for me on the top floor of the house (3rd storey) and her steps are hardwood, varnished.

I wore socks (I was freezing post op) and slipped more than once until I ended up spending most evenings on the sofa...way too dangerous.

Don't freak too much but a little bit of prep work goes a long way...

Keep that list going...

S

hi

thanks for this great info.  nope, no such thing as pureed veggies in the market, but that certainly will be something i can make up before hand.  it's a great idea.  as for pantyhose, no problem, don't wear them.  don't anticipate going out for anything dressy for quite some time.  i'll be over two weeks out, close to three, before i return home to the stairs and kitchen on the top floor so am not too concerned.  if need be i can stay at my friend's home for longer.  will miss my dear cat.  

the problems i've had with the j pouch, anemia and other issues has somewhat socially isolated me over the past years.  it has been good to hear from several friends that they will pick me up in cleveland or drive to vermont to get me or bring over dinners.  so those friends that stuck by me are so fantastic!  (none of my sisters offered to come to cleveland to take me home.)  one friend said she will drive from milwaukee to cleveland so i'm not in the hospital alone!! she's 87.  i told her not to, rather i'll come visit her in milwaukee prior to the surgery.  stupid of me to add on another thing before the 13th, but she prays for me every day and that is amazing gift.   

 

how are your tags doing??  janet

Still bleeding a bit (as if I actually took the time to look for those darn silver nitrate sticks!)...I have tons of granulation on the stoma so I need to really work on it and just can't get up the energy to do it (it takes 0 effort really, it is just finding those sticks!).

Since my Ethiopath has been working on my organs (deep tissue) I am having less sharp pain in my abdomen...he says that he was working on my liver (which was enlarged according to the last ultrasound) to 'pump out' the blocked bile (does that even make sense?) ...not sure what he did...it hurt like heck at the time but those sharp abdomen pains that took my breath away are all but gone ever since! 

Same with the left side blockage site...no more knife pains...maybe it was adhesions again...for now my sacro-iliac pain is about 40-50% less than it was...it comes back as my joints move and pop out but I am not crying yet...and am doing tons of exercise...back to climbing my 70 steps 10xs plus my hill and yoga + pilates...it takes about 55-70mins...great workout...did not think that I would ever be able to do it again...got to go back to see him on Sat...he will put the rest back in but for now, I would honestly say that he is a miracle worker.

For your veggie purées...

if you have a pressure cooker or steam cooker then just buy big bags of frozen veggies, steam the whole bag's worth at one time then purée and freeze in ice cube trays, pop out and put into ziploc freezer bags...works wonders!

S