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The brand of peppermint I use is 'Now' brand. After it passes through an exits my BM smells like peppermint. Most of the time I get a burning sensation. 

Did you want to know the brand name of something else? You didn't say.

Whatever condition you were taking the peppermint for, I will also suggest that you google ' natural remedies for and name the condition'.

If there is a specific product you want to know the brand name of tell me what it is and I will let you know.

Good luck colitisman.

Jo

clouseau posted:

I have it done in southern Ohio at a hospital, not at the Cleveland Clinic.  We have several of them in my city.  I am sure your city has some orif in a small town they would be nearby.

Unfortunately I have had 20 treatments so far and see on difference.  I am actually worse in the last week but I think it is because my antibiotics which I rotate each week may becoming less effective.  I am in the bathroom over 20 times a day, sometimes every half hour.  I am still hopeful as I was told it often takes 20 plus times and will keep everyone up to da

Clouseau, I'm in SW Ohio... what hospital did your treatments?  And, if you're possibly in the Greater Cincinnati area, do you have a good GI that you see locally, besides your visits with Dr. Shen at Cleveland Clinic?  I'm looking for someone with more experience in pouch maintenance, and who's actually available for more than a scope once a year.

 

since1991 posted:

Hi everyone! 

So happy to have found this forum.  I've had my pouch since the day after Thanksgiving 1991.

For most of these years I have only seen my colon and rectal surgeon to treat any problems I had as a result of the surgery. He never referred me to gastroenterology and the only treatment I had for probably 20 years was antibiotics.

When I started questioning him about other treatments he wasn't pleased. He did refer me to gastroenterology but the doctors there who were at the same clinic wouldn't do anything without first consulting him. The bottom line was I still was taking antibiotics. The long term use of flagyl cipro and there was another one caused me to have a terrible rash on my legs. In addition to the rash on my legs because of the itching around my anus and vaginal yeast infections I believed I had yeast inside my Pouch as well.

I decided I was going to take myself off of the antibiotics as I believed they were the cause of the diarrhea that I had been having. I had to take a couple of courses of diflucan as well as vaginal yeast infection cream around my anus as well as in my vagina To clear up the yeast.

Through my research I discovered that soluble fiber would help with the diarrhea. IT did. Make sure its not wheat based like What's in benefiber. I take 100% acacia soluble fiber. It helps a lot. I also take probiotics as well as peppermint oil tablets.

My anus was raw from years of frequent bowel movements. I just recently got some liquid lanolin 100% pure from whole foods and I have been putting that on my anus and just for two days the results have been wonderful. I feel my anus is almost healed up. No burning and itching anymore. It's a great barrier. But make sure to clear up any yeast before using such a barrier.

My doctors are all mad at me because I stopped taking the antibiotics and I declined to take Humira and the other drugs they were trying to give me because I did not like the side effects.

also i got a bulb syringe and started flushing my pouch  with 100% organic aloe vera in distilled water. Please be sure not to use tap water because it has chlorine and bacteria. Only use distilled water in enema.

I feel so much better And I'm not taking any drugs. My experience has been the drugs don't help or give you something else to deal with. 

Good luck to all of you! The past 25 years have been mostly horrible dealing with Pouchitis. 

This year has been the best ever. I just changed my insurance to Humana so that I can see a doctor at the Cleveland Clinic for anal fissures. I hope they can be treated without losing my continence.

God bless and I will read your comments! 

Jo 

 

 

hi who do you see for possible yeast problems i always itch..and lately some leakage at night never had..

allykat,

Re acacia:

my son takes 5 capsules of acacia fiber 2x a day.  Below is a link to the Renew organic clear 100% acacia he uses - can get it on amazon or pretty sure the Vitamin Shoppe may have it. Also linked to the capsules I put it in. (You could drink it with mixed with water but my son doesn't.)

http://www.amazon.com/Renew-Li...-ounce/dp/B0014UUQX6

http://www.amazon.com/s/ref=nb...now+00+c%2Chpc%2C135

The acacia helps solidify things for him.

Hope you are feeling well.

 

 

Hi,

I was recently at Dr. Shen for my first visit. I have been having Chronic Pouchitis ever since my pouch was formed. I have tried multiple meds to treat it but none have worked aside from antibiotics which are no longer effective. I went to Dr. Shen because I wanted to see someone who specializes in pouches. He found on the pouchoscopy that the main area of inflammation was the cuff (Severe Cuffitis) and because of that said I have ischemia related pouchitis. I also have mild pouchitis in other areas of the pouch, but he believes the main issue is ischemia related. He recommended hyperbaric therapy which I am very skeptical of especially after reading the experiences of people on this thread. I would love to hear from someone that it actually did work on I don't want to invest time, possibility money  and hope in a therapy that seems to have very weak results. Can anyone that had success with hyperbaric therapy chime in please?

Also, as for the doctor, other treatments like meds or not effective in treating ischemia related pouchitis - can anyone vouch for this either way? I want to know if this the generally accepted opinion or just his opinion.  

Obviously, any other feedback or thoughts would also be appreciated.  

If the pouchitis/cuffitis is from ischemia (insufficient blood supply) then medications are unlikely to do the job. OTOH it sounds like antibiotics used to work for you, which doesn't fit well with ischemia, unless Shen believes the ischemia has developed somehow after a delay. If it really is caused by  ischemia then the hyperbaric chamber might help by increasing the oxygen in the blood that does get there, but you might ask him why any improvement would be expected to continue after the hyperbaric treatments are completed.

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