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Yesterday I started to dehydrate...my output was unheard of losing liters of fluid in a very short time. I just couldn't stop peeing...very strange.

I drank and drank and the thirst just would not go away. I ate salty nuts, bananas, made ramen noodles with their very sodium-rich powder in a huge bowl of soup...I just kept losing fluids. By evening my right kidney started to ache and spasm.

I was afraid of maybe passing a stone or being blocked.

It lasted about 18hrs and has seemed to calm down a bit but the thirst is unbelievable. I just cannot get rid of it. 

Lemonade, water, herb teas...nothing is helping (no, I cannot find the stuff that you guys get there, Pedialyte etc)...

My pouch is fine, nothing on that end and the kidney pain is gone but the thirst won't let up. 

No headache, lightheadedness or other symptoms other than being exhausted, freezing, shaking and fuzzy. (4 or my 7 dwarfs!)

Back to work and almost back to normal but I would love to know the cause of this.

Sharon

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You probably picked up an intestinal virus. I hope ist clears up very soon!

It’s easy to make oral rehydration solution at home, arguably better in many ways than Pedialyte. Although the ideal solution includes glucose, potassium, and sodium citrate (in addition to table salt), it’s adequate with sucrose (table sugar) and salt. Glucose is easy to buy in some countries and surprisingly hard to find in many, including the US. Recipes are all over the internet, and Wikipedia has more information: https://en.m.wikipedia.org/wik..._rehydration_therapy

Last edited by Scott F

Thanks guys, 

Scott, my pouch was just fine, output normal so it wasn't a pouch thing. 

Strange, I have been steadily increasing my salt intake over the years since I learned about dehydration and pouchers from this site (about 10yrs ago)...I never used salt prior to then and often found myself with the dizzies, the wobblies and my favorite 'fireflies' in front of my eyes. They called it orthostatic blood pressure drop or Vagal Malaise...in other words near fainting.

I now eat about 5-10xs the sodium as I used to and the dizzies have pretty much gone away. (I have also gained about 15lbs since I have done that...But my BP is still critically low around 110/50)

This was different...I was urinating about 2xs/hr...output transparent and odorless...it is sort of still going on now...but less...output about 1xs/hr but less...not cystitis...no burning...just normal.

I am starting to wonder if it isn't a UTI brewing???

For now no fever, pain or chills any longer so maybe it is clearing up.

Sharon

Oh, now I get it: the fluid loss was all urine. There are a couple of dozen possible causes and a UTI is a very common cause, assuming you don’t have diabetes. It’s also helpful to try to figure out which came first: excessive peeing or excessive thirst. If it doesn’t clear up on its own you’ll need an internist to help sort it out. Good luck!

Sharon, it does appear you're over the worst of it.

Such a fluid loss will lead to dehydration and once genuinely feeling thirst, you are, in fact dehydrated.

I'm sure you're already aware; It's the loss of electrolytes and potassium which causes most, if not all symptoms associated with dehydration.

I found, whilst awaiting takedown, dehydration would creep up on me; one minute I was feeling tired and cantankerous, the next minute I was awaking surrounded by Paramedics and be preparing for a journey to hospital.

Oh, I wasn't losing fluids either; my body wasn't able to absorb the fluids I was consuming, due to the temp ileostomy.

Last edited by Former Member
Scott F posted:

If the thirst comes first you won’t get dehydrated, you’ll just drink too much followed by peeing too much. If the peeing comes first, though, dehydration is a real risk.

Various Doctors all said that by time I start to feel thirsty, I've already dehydrated: and the feeling of thirst is our body's way of alerting us to dehydration.

Although, in my case, my brain somehow confused the feeling of thirst with hunger, therefore, I didn't realise I was thirsty or dehydrating.

I was actually admitted to hospital by emergency ambulance due to dehydration and renal failure.

On numerous occasions and before takedown, my salt or potassium level was so low, yet my urine was clear, Paramedics believed I had overhydrated.

Last edited by Former Member

That is a problem...overhydrating...I think that I was sort of in that case...I just couldn't stop drinking...I felt like a Camel.

Although it is still present it is not as pressing as it was...if it continues I will have blood work done...you got me worried about diabetes...and I am a sweet eater...So it is not something to take for granted.

Sharon

Thanks, Drone3,

I will try it...I know that apple cider vinegar is great for a lot of things so why not stones etc...I have had them before...years ago but have dealt with them since I bought a water filter system (recommended by my doctor)...but we recently moved to an area with particularly hard water and it may be part of the problem...I even filter my ice cube water but still some comes through...off to buy vinegar!

Not sure if I can buy raspberry tea here but I will look.

Sharon

Things have appeared to regulate on their own this week...maybe because it got cold or I was away for a week at a 'health spa' trying hard to get my poor body to heal and not feel pain...

You drink lots of spring water (naturally bubbly), spend 3hrs/day exercising in a hot seawater pool and generally doing your body good...

Although I did not expect miracles I at least thought that the pain would reduce...no...

But at least the urinary output has calmed down...

Dr is sending me for tests anyway...I will know more by next week.

Thanks

Sharon

sharon--what sort of tests?  have you had ANA tested.  of course it will pick up uc or crohns, but has it increased since last test?  the uptick just happened to  me.  doc thinking gout, as uric aid was elevation. also, tested for rheumatology, which was normal.  terrible pain in my hand.  i think it's tendonitis, but need to go to another doctor and then another and does this ever end?  am adjusting my diet for the gout issue.  i don't think that's the problem.

last time i got dehydrated my legs and hands developed astonishingly painful cramps, or was it tendonitis.  never found out.  i think tendonitis, but who am i--just the body they poke at!!

keep us posted.  janet

Right now I am having urinalysis first to rule out any UTIs being that I am having a lot of low back pain.. not necessarily indicative of a problem being that it is a constant lately but I am getting kidney-kicks which scare me (sign of kidney stones in me).

Plus my am left arm is still broken?  A link? Am I suffering from a deficiency ? I see the new ortho next week and we will see what she says...

1 week of Thalasso helped a lot... I "took the waters" and have slowed my output but the kidneys are suffering still...to be continued...

Sharon 

taking the waters is always wonderful and glad you had the opportunity.

from repetitive dehydration i developed chronic kidney disease.  it is only mild and take sodium--2 g daily--to counterbalance.  no nasty symptoms so am fortunate in that respect.

hope it's not stones as i've heard they are terribly painful.  what a bummer that your arm hasn't healed.  did they do a bone density test?  i mean one in a machine, not just you falling on the sidewalk!  j

😂yes they did and I have the Skelton of a 30 yr old....they explained that the way that I fell I should have broken my arms into bits but only sustained 2 compression fractures...which proves the strength of them...I still think that there is also a break in the left wrist...the new ortho will check.

Been told by others that the fracture should have been wired from the start...something seems to be wrong with my healing process ...duh...ehler's-danlos syndrome working it's magic...cant heal.. I really upped the healthy water intake while away, hopped in the water for hours and thought that I doing myself good. ..now I feel like an astronaut hurled to earth through orbit...crappy all over. 

Is this just aging? Our disease  or us?

Sharon 

Hey sharon, sorry to hear your back in the wars again!  A couple of things you could look into.  Iron levels can cause thirst issues, especially if well out of whack... You seem like the kind of girl that that we be in top of that however... But that would explain how it came and went.

 

Diabetes insipidous (has nothing to do with diabetes despite it's name) affects the kidneys and how the regulate the fluids in your body.  This is a hormonal issue which can either be temporary due to illness or infectionin or I guess linked to 'the change' in women.

 

 

Last edited by Bobish

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