Dehydration

my biggest problem with chronic refractory pouchitis is that I get dehydrated really fast, to the point where I need to get IV fluids in order to function. I’ve been untreated since January (going on 4 months) while I work through the alicaforsen trial. But either the drug isn’t working or I’m getting placebo, and I’m just getting sicker. When pouchitis symptoms are under control with antibiotics, I’ve gone for IV hydration about 3-4 times per year. Right now I can barely make it a week.

i don’t read about this on this forum at all—do others go through this? It’s just part of my routine now but I can’t believe I’m the only j-poucher who goes through this.

Original Post

There are hydration products available that do not contain all the sugar and food coloring that come in products like gatorade and powerade.  My favorite is NUUN electrolyte tabs.  They come in tab form and go into plain water.  I also have clear fluid that I add to water for when I need hydration right away.  It is Lytebalance electrolyte concentrate.  There are other versions as well as the world health organization WHO formula powder packets. Some products are listed for helping with hangovers - which are usually when people are dehydrated.  

I have ordered these from NUUN directly, amazon and ebay plus some are in my local food stores.  The ones in local retail stores cost more where I live.

I use to need to get iV fluids as well.

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