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Went to NYU LANGONE for a second opinion 3 weeks ago meet with DR DAVID HUDESMAN found out there was a blind study just starting for ALICAFORSEN  just started with meds or placebo .Study had good results in Europe and just started in the states.NYU is approved for 10 to 15 subjects and about 170 total subjects in the states .His # is 212-263-3095 his nurse is Amy i'm sure if you  have any questions about the study they can help you. Have had chronic pouchitis for 4 years not crazy about chiemo  based drugs like 6 mp and thought this was worth a try.Only day 2 hoping it works.  

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