Butt Burn explain - advice

I wish it would hurry up the damn burn and go away!  I never get a good night's sleep..

I resorted to using a numbing cream I got from my Dr. 

It's a prescription.  It was so bad.  I know what you mean. 

I had monkey button so bad I could barely sit down. 

Nothing worked but the cream would give me a little relief.  I only used it a few times.  

My pouch is gone now.  I have permanent relief.

I don't miss the BB at all!  And everything that goes with it. 

"The thing is, it's not just normal stool passing like before. I had it scientifically analyzed with a Hewlett Packard gas chromatograph with flame analyzer detectors (the turbo-charged model), and found the stool after take-down to consist of molten lava, broken glass, lengths of razor wire, barbed wire, and rusty thumbtacks."

So glad I didn't have a mouth full of coffee when I read that......broken glass, that's classic.

As for the BB issue, I never got it.  I use baby wipes, and if a BM is unusually heated and prolonged, I'll just get in the shower and soap the crack up really good before resuming my day.  I'll use Calmoseptine if the skin starts feeling bumpy, but there's never been any pain or burn for me.  There was some "up inside the hole" itching for a few weeks after my DLI reversal, but at the 8 month mark that's gone.

Unfortunately, this is probably the worst part of the pouch for me.  I am 4 months post surgery.  For me it really is dependant on the type of food I eat.  a lot of foods cause the BB especially tomato sauce, chocolate and spicy foods (all of which I loved before).  

I read it goes away for other people but I assume it's the acidity of the foods I eat and the fact I normally have pretty sensitive skin to begin with.  

Hoping it does go away eventually...

QUESTION, once the cream is applied what happens when you have your next bowel movement? how do you wipe with all that sticky cream in your crack? especially when you have hair back there??

Yea, it just wipes off.  A&D & Calmoseptine seem to be absorbed somewhat, but not completely.  They act as a barrier for the next BM mostly, but I'm sure they provide some relief as well.  I could never figure the Ilex out.  It doesn't dry, and just smeared around in my sweaty butt crack making it feel like I had leaked or something.  The Calmoseptine seems to be the best IMO.

I am 2 months post op ileostomy takedown (I have J pouch) and I have burning and itching really bad. I have read other posts that it goes away with time but it is just very discouraging having to go thru it. I see several people have posted to use Calmoseptine so I will try that. I just wanted to thank everyone who posted in this forum with suggestions...I am getting at my wits end with the problem

If you're not using some sort of barrier cream, you'll have a rough time.  My advice would be to get the Calmoseptine (Wal Mart has it, but it's in the pharmacy, so you'll have to ask for it), and after each BM, don't wipe, just step straight into the shower and wash your but with mild soap (I use Cetaphil), then apply the Calmoseptine.

Davids response was a bit over the top but back a lot of painfull memories from  past 23 years . BUT one point he did make was about the BIDET. I just bought a hand held bidet from Canadian tire in canada and installed it boxing day.

Xmas is one of my worst times with BB BUT THIS bidet has completely stopped the burning. 

The CTC bidet is plastic and has some issues so I have  ordered two stainless hand held bidets from Amazon.ca. Hopefully they wont leak like the CTC plastic one.

hopefully no more need for zinc oxide, and no more but grease stains coming through.

I had no butt burn while wearing the bag, even with the mucous discharge. After takedown, the burn for me is minimal, but I don't use toilet paper, I use fragrance free wipes.  It also depends on what you eat.  I ate some bean dip with jalapeños and omg......fire in the hole!!!  I couldn't even sit on a chair because my butt was on fire!!  But, I use Sensi Care barrier cream which cools and heals rapidly, and makes all the difference in the world!!  As time goes by, the skin down there in your nether regions will toughen up and butt burn will be a distant memory.  I couldn't be happier with my pouch, I loathed the bag and don't ever want to go back to it.  Butt burn is a small price to pay in my book.  Best of luck to you, you'll be very happy with the pouch when you get it!

Nora

Hi Nora, I was originally given the Sensi Care cream at the hospital but cannot find it anywhere and have been using Calmoseptine which works well but I do prefer the Sensi Care.  Where do you get it?  The only place I can find it is on Amazon.  

thx

props to David for the most entertaining and vivid description of buttburn ever!

I'm still laughing out loud.

fwiw, you'll have to figure out your preference for diaper rash cream or barrier or whatever you choose to call it. I started using Desitin as that's what my surgeon told me but truthfully the zinc ozide would leave residue everywhere, one time in the hospital they only had A&D ointment and so I was converted. ive also used Calmoseptine but for me don't find it as effective as A&D and I found it almost as messy as Desitin. Ive also used Aquaphor from the hospital too and wasn't as pleased. But to illustrate how preferences vary I have a friend who is happy to use Desitin but find A&D messy/too oily for her. ps Calmoseptine will leave your butt with a fresh minty feeling, think peppermint pattie but on your bum, hows that for appetizing? lol.

BWILS:

I order the Sensi Care Barrier Cream from Byram Medical Supplies. Best part, my insurance covers it.  They call the doctor and do a prescription over the phone!  I like it better than any other cream, even Calmoseptine!

Nora