i am currently diverted with a loop ileostomy since 10/15 after 2 nasty fistulas with my J pouch intact. Dr. Gorgun at Cleveland Clinic formed my ileostomy and I now have the best ileostomy anyone could ever ask for especially considering he is a loop. I have been 99 percent sure I am going permanent ileo but have been suffering from peri-menopausal symptoms (at age 42-ugggh) and am having more problems making a decision than usual. Anyway, I heard Dr. Remzi from Cleveland Clinic moved to NY so I saw him today b/c I live in PA and NY is way closer for me. Of course, Remzi wants to repeat tests and do new tests to make sure he is giving me the best advice possible but it sounds to me like a permanent ileo is in my future. I don't know if I should use Dr. Remzi b/c he is closer to home. I know he has a great reputation with J pouches but I don't if people have had equal success using him for J pouch removal, etc. OR should I just go out to Cleveland Clinic and stick with Dr. Gorgun b/c this temp ileo is so awesome?? My insurance will only cover a portion of the bill at either place so I will incur some debt no matter where I go.
Thanks for reading!