AIP (Autoimmune Protocol) and Whole 30 diet for rotten Pouches??

Hello, I may have already posted my two cents but I have had a few bouts of PI since 2001 when I had a proctocolectomy and pouch construction.  Shortly thereafter the pouch was hooked up I developed COPD. My doc at CCF said 30% of his patients also have COPD - another autoimmune disease.  

I follow the microbiome diet (Robyn Chutkan, The Microbiome Solution).  My pouch has been perfect since I changed my diet.  I'm also in a mindfulness group, walk 2-3 miles a day. So the whole package seems to be working to keep my pouch calm.  

I hope this helps.  All the best.

Joanne

I have been feeling much better on 250mg Cipro in the morning and 250mg Cipro and Flagyl at night.  Lomotil and 1%Tincture of Opium in smallish doses.  I'm just off a five day fishing trip; I could not chance being sick (fishing boat bathrooms NOT approved for people like us!).  I was careful on what I ate and limited the amounts.

Today, I will stop the antibiotics; keep on a strict SCD/Whole30 type diet. 

I've failed (gotten sicker) everytime I stop/challenge the meds. 

Now that I have a 'scorched earth' gut bionome; will try to rebuild a better bacteria flora. fingers crossed! 

Perhaps I am insane (doing same and expecting different results), but this is not a fair fight and I'll keep trying.  LOL

Good health to all!!!

Mike

Joanne posted:

Hello, I may have already posted my two cents but I have had a few bouts of PI since 2001 when I had a proctocolectomy and pouch construction.  Shortly thereafter the pouch was hooked up I developed COPD. My doc at CCF said 30% of his patients also have COPD - another autoimmune disease.  

I follow the microbiome diet (Robyn Chutkan, The Microbiome Solution).  My pouch has been perfect since I changed my diet.  I'm also in a mindfulness group, walk 2-3 miles a day. So the whole package seems to be working to keep my pouch calm.  

I hope this helps.  All the best.

Joanne

Thanks for this.   I actually saw Dr.Chutkin twice.  She is a FODMAP //VSL3 believer.   I will credit her as being the first GI doc who espoused dietary control of my symptoms!

I couldn't stay true to the diet and wasn't offered any practical advice on how to self-administer a homemade VSL3/Cocunut oil enema (sounded easy in the office; not so easy in my kitchen (cocunut oil had to be heated as to mix the VSL3 in).  I believe my attempts caused a fissure which still hasn't healed.  She wasn't that 'practical' in my opinion.  The $700 cash/cc payment//no insurance accepted per visit was another issue.

The book she referenced was Dr. Martin Blaser's, "The Missing Microbes".  I know she just finished her own second book.

I put up a post in 2014 on my experiences with her FODMAP protocol.  The theories are inline with what I'm trying recently.

I am grateful that you have had success with this!!!

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