Re: new drug for pouchitis???

Rebe0505Member

hi i rotate antibiotics so far successfully for last three years out of 11 with pouch. but i always know down the road i may pay the piper with an infection i become resistant to and my ENT DOCTOR IS CONCERNED ABOUT ME. i wrote dr.Shen to see if anything new down the pike. he said yes..ENTYVIO..HAS ANYONE ELSE HEARD OR TRIED THIS?Side effects online sound nasty..But we need to pursue this..ANY MORE INFO ON IT?MAYBE WE ALL NEED TO ASK OUR DOCTORS...

p.s sorry for caps...

12/3/175:45 PM

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paulnMember

shen says a lot of things.

12/3/178:43 PM

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Rebe0505Member

You know PAULN I LOVE Shen but you are right I MUST ADMIT.

12/4/1712:35 AM

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jodiloveslifeMember

I just started Entyvio last week for my chronic pouchitis. Antibiotics we're not helping anymore. I hope it works 😊

12/4/1710:30 PM

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Rebe0505Member

JODILOVSLIFE PLEASE KEEP US INFORMED IT WOULD BE VERY VALUABLE FOR ALL OF US. FINGERS CROSSED IT WORKS FOR YOU.CAN YOU TELL US WHAT YOUR ANTIBIOTIC EXPERIENCE WAS?DID YOU TRY ROTATING ANTIBIOTICS OR DID YOU JUSRT TRY ONE UNTIL IT STOPPED WORKING?I COULD NOT STAY ON ANY FOR A LONG TIME AND THEN WENT TO 4 ROTATING GIVING ME A REASONABLE TIME TO HAVE IT WORK AGAIN. IT FLUCTUATED AS TO HOW LONG I GO ANYWHERE FROM 10 DAYS TO ONE MONTH.FOR SOME WONDERFUL REASON I HAVE BEEN CONSTANT FOR PAST TWO YEARS MAKING A MONTH ON EACH.

HOW SOON WERE YOU TOLD IT MIGHT KICK IN?AND IS IT NOT AN INFUSION?HOPEFULLY YOU WILL NOT HAVE ANY SIDE EFFECTS THAT ARE BOTHERSOME.WHO IS YOUR DOCTOR AND HAS HE A FEW PATIENTS ON IT SUCCESSFULLY.MY GUESS IS WE ALL HAVE POUCHITIS BUT WIH DIFFERENT FLAVORS SO NEVER DOES IT WORK FOR EVERYONE.SIGH!!!!!

REBE

I LOVE YOUR EMAIL IDENTIFICATION BY THE WAY!!!

12/4/1711:24 PM

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