Jess, wow - 13 months old is SO little. I think that's about the youngest our GI clinic at Children's Mercy in Kansas City said they have dealt with. Glad tests are coming back positive so far, and crazy to think of scoping such a little body. Hope it all goes well.
We live nowhere near Boston, but our almost-12 year old (she has told me she is not 11 1/2, but 11 5/6 LOL) was diagnosed at 6 1/2 years. The biggest blessing is knowing what we were (potentially) facing, and not being unaware of IBD altogether like so many parents. Scopes went fine - their practice utilizes one doctor for all scopes. I guess that's a good idea. Certainly well experienced. She avoided the hospital that year, but was in the hospital a year later and never really reached remission again. We tried prednisone, biologics (Remicade and Humira), and teetered on starting on Imuran. In the end we opted for surgery since the only med she responded to at all was prednisone, and not 100%. Prior to surgery she was getting up 6 times at night - which is no way for a kid to live. I consider her surgery very successful, and was shocked how well and quickly she healed up. She lives with chronic pouchitis that does cause some absorption issues, but you would never notice by watching her. Hope this helps. - Steve