Hello,
Im in the same boat as you with regards to this subject.
I'm the only one in my family with FAP so it was all new to me. When I found out 8 years ago, i was diagnosed with colon cancer and thyroid cancer. After going through the surgeries, chemo, treatments I decided meet with the fertility clinic and the genetic counsellors and got all my info about fertility options.
One thing we learned with the genetic counselor is that you can genetically test the baby during pregnancy. So if the baby has FAP then we avoid the chance of getting any late stage cancers since they will be getting checked from day 1.
Even though my FAP experience was a little rough in the first few years, I have since lead a pretty happy life and FAP didn't get in my way. Since then, I met someone, got married, travelled the globe and have my job. I'm very happy with my quality of life and so my husband and I are questioning whether PGD is really necessary for FAP. Again, we're not sure yet and we obviously want to learn more before making any decisions.
Hope that helps!
Zee