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Reply to "K-Pouch Mucosal Prolapse"

Hi Janet – I did go see Dr. Dietz and he ended up scoping my pouch and tube. Although my valve has slipped a little, it is not enough to cause leaks; therefore he believes the leakage could be from my stool consistency. It needs to be thicker as it too loose. He says I am intubating too much, causing irritation to my valve and not intubating enough at bed time thereby allowing my pouch to get too full. I was overworking my plumbing and I need to slow it down. So I need to modify my behaviors and be kinder with my pouch. It was worth the drive since I learned quite a bit. With my skin so irritated, the stoma nurse gave me some different ‘pads’ and some different powder that quickly cleared up the irritation. So with the aforementioned advice, I will see how it goes. I appreciate your story because I have had the same thing happen to me. I do get ‘gunk’ that comes out sometimes and it never really worried me. When I eat poorly (asparagus, lettuce and green beans for example) these chunks come out sporadically in addition to clogging my tube with every intubation, it is a pain and I should know better! Thank you all for your advice and follow up.

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