Kara
Glad you made it to Cleveland despite the unpleasant drive. Thanks for posting the results of your appointment as the info helps the rest of us understand how to better manage our K pouches. It sounds like you're on a new path.
How often where you intubating and during each session would you intubate multiple times to remove the more solid foods? I'm also curious how much you irrigate. I was told to irrigate at least twice a day. Usually I intubate four times a day and irrigate extensively each time. One reason for the extensive irrigation is because my stool is thick. Another is because I had chronic pouchitis and extensive SIBO. Does irrigation negate these two problems? I don't know but so far I've been clean.
Did either Dr. Dietz or the nurse have any suggestions for getting the gunk through the catheter, other than mucho chewing or not eating certain foods?
Hope everything is more manageable and you are feeling better. Janet