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Reply to "JPouch stricture, surgeon recommending illeostomy as ONLY solution"

Again Jan, you are spot on.  Getting someone who has the time to listen and to talk you through all your options is very difficult.  When I see my consultant I am lucky to get 5 minutes of his time and I leave feeling that I wasted my time even going there!  

I think it was an end ileostomy I had, I haven't got a large bowel anymore so I assume it was that ??  I am not an expert on that side of things, I suppose I've never really wanted to know.

However, amazingly, I emailed St Marks at 2pm this afternoon and at 5pm the 'pouch nurse' rang me and discussed my case and then recommended I get my doctor to refer me as soon as possible and that I would be seen by the consultant there who specialises in pouches, cant remember the name now.   So I am happy about this very quick response.  Now I just need to get my doctors to hurry up and refer me, as they have all the time in the world, unlike me!

 

 

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