Again Jan, you are spot on. Getting someone who has the time to listen and to talk you through all your options is very difficult. When I see my consultant I am lucky to get 5 minutes of his time and I leave feeling that I wasted my time even going there!
I think it was an end ileostomy I had, I haven't got a large bowel anymore so I assume it was that ?? I am not an expert on that side of things, I suppose I've never really wanted to know.
However, amazingly, I emailed St Marks at 2pm this afternoon and at 5pm the 'pouch nurse' rang me and discussed my case and then recommended I get my doctor to refer me as soon as possible and that I would be seen by the consultant there who specialises in pouches, cant remember the name now. So I am happy about this very quick response. Now I just need to get my doctors to hurry up and refer me, as they have all the time in the world, unlike me!