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Reply to "JPouch Removal- How are you now?"

I had a j pouch for 30 years that had to be removed due to recurrent high grade dysplasia and a malignant polyp in the anal canal.  I strongly did not want an ileostomy with its associated issues.  Fortunately, I did research on the K pouch and BCIR, two options that do not require having an external bag.  I opted for the BCIR, which has worked out very well for me.

Removal of my j pouch was more difficult than normal due to dense adhesions that resulted from three previous surgeries, but my surgeon was able to do everything (including the BCIR) in one operation.  I had no problems making the 12 hour trip home by plane and car and was able to do many of the activities I enjoy soon after returning home.  It took a while to fully adjust to my new plumbing, but I am able to do anything I enjoy (including heavy lifting) and eat a normal and healthy diet.  I have no pain from the procedure, no leakage and empty my pouch 3-5 times a day at my convenience with a small plastic catheter.  Although I had a significant weight loss after surgery, I regained over half of it back and now need to keep from gaining more.  My bottom healed very quickly and I have no feeling down there that I have to “go”.  I do feel internal pressure when my BCIR pouch is full, but that is just a signal that it is time to empty it.  There is a lot of information about the K pouch and BCIR that I would recommend if your son would have interest in either of these procedures.  Best of luck with whatever you decide to do.

Bill

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