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Reply to "J-Pouch Removal"

Michelle, I had my j pouch for 30 years and experienced problems similar to yours.  I strongly did not want an ileostomy with its associated issues, so I adapted my lifestyle to allow doing what I enjoyed.  During this time, I had a full-time job, skied in the Rockies, participated in equestrian competitions, traveled abroad and had a good social life.  I suggest that you get a second opinion from a doctor who has lots of experience in dealing with pouch problems before considering pouch removal. There may be other things you could try to obtain acceptable results with your pouch.  Once your pouch is removed and your bottom sewn up, there is no going back.

In my case, I had recurrent high grade dysplasia in the anal cuff and removal of a malignant polyp there appeared to have significantly weakened the sphincter.  The j pouch had to be removed.  Although the surgeon I saw at Mayo Clinic for a second opinion recommended only an ileostomy, I still did not want one.  I did additional internet research and learned about the BCIR (similar to the k pouch) that does not require having an external bag.  These procedures are not widely known and are performed by a limited number of surgeons.  I opted for the BCIR and the surgery went well.  I now have a very good quality of life and can do all the things I enjoy and not have to be concerned where the nearest restroom is located.  In some cases, the surgeon can use your existing j pouch to make a k pouch or BCIR.  I wish you the best with whatever you decide to do.

Bill

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