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Reply to "J pouch deterioration"

I tried leaving the pouch in, it didnt work for me. The stoma was an end illeo but the tension on it from the remaining pouch pulled it, so it was near flush, hard to pouch well. Could probably have lived with that but I started getting lots of secretions, what they call diversion colitis, in/from the abandoned J pouch which got worse and worse so I ended up removing the  pouch, but we left the anus (not rectum  which was gone) intact and didnt get the barbie butt, less surgery. It has worked out well for me.  The do a 2 minute scope every two years to see if anything is going on in my tiny 2-3 inch back pasage. Typically, but not always they remove everything in this surgery, I am the only such case my GI has

There is some risk of sexual disfunction and peeing issues from pouch removal. You need a good surgeon experienced in pouch removal. As I recall the % of issues is quite low for pee problems but higher with sexual disfunctions.  Every surgery is significant, I would recomend just removal get it done and make sure you get a good stoma with the opening 3/4" + above the skin surface. Good luck

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