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Reply to "Have you got more autoimmune diseases than Colitis?"

TC, everyone's free to explore their own options. I just can't think of many things more dangerous and discouraging than telling vulnerable people who are extremely sick and scared (especially the newly diagnosed, who are extra bewildered and frightened) that they're contributing to their own illness, that science-based medicine offers minimal relief, and that all they need to do to feel better is practice potentially disordered eating (not all diets go that far, but some do) or buy the latest fad oils or do the hokey-pokey under the light of a full moon while chanting Dr. Oz's name. These days I encounter a lot of that on both IBD and AS support boards and understand why it gets people riled up.

It's true I'm past the point of no return with my colon, but I was also sickest at a time in history when treatment options were fairly limited. There has never been a better time to be diagnosed with IBD than today, and patients should feel empowered by that even if it's unfortunately true that some will still lose their colons. (And even then, their suffering might continue. My pouch and cuff remained inflamed and now I'm on Humira.) If they want to experiment with dietary changes, more power to them -- I just hope they're willing to give modern medicine a fair shake, too. My objection is to the abrasive tone of alternative treatment zealots.

Last edited by bowelsofhell
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