Hi!
i am in Allentown PA. Where are you? And how is your health currently going? This is gonna sound crazy but I had an MRI and barium enema x-ray, and pouchoscopy with Remzi the end of August and I never personally got the results of these. I am not sure if I am not using their EPIC system correctly, but I can't see all the results(only blood lab results which who cares about them...hahaha). Remzi spoke to my husband tho and the possibility of re-connection did not sound good. At least not without trying more biologic drugs first and I don't want to go that route for a questionable so-so chance of outcomes. I will get the results before making any final decision but I guess my plan is to go back out to Cleveland eventually and remove my J pouch, close up everything, and get an end ileo. How is your experience with NYU Langone? Going there with Remzi doing the pouch removal surgery is also a possibility but I really love my ileo and am afraid to trust another surgeon to construct my ileo even if it is the great Remzi. Overall I liked my experiences at Cleveland better than NYU Langone but I am not sure that I had as many interactions at NYU Langone compared to Cleveland so that may not be a fair statement. I hope things are looking up for you. I am not a fan of fistulas and drains!!