Joanne posted:Hello, I may have already posted my two cents but I have had a few bouts of PI since 2001 when I had a proctocolectomy and pouch construction. Shortly thereafter the pouch was hooked up I developed COPD. My doc at CCF said 30% of his patients also have COPD - another autoimmune disease.
I follow the microbiome diet (Robyn Chutkan, The Microbiome Solution). My pouch has been perfect since I changed my diet. I'm also in a mindfulness group, walk 2-3 miles a day. So the whole package seems to be working to keep my pouch calm.
I hope this helps. All the best.
Joanne
Thanks for this. I actually saw Dr.Chutkin twice. She is a FODMAP //VSL3 believer. I will credit her as being the first GI doc who espoused dietary control of my symptoms!
I couldn't stay true to the diet and wasn't offered any practical advice on how to self-administer a homemade VSL3/Cocunut oil enema (sounded easy in the office; not so easy in my kitchen (cocunut oil had to be heated as to mix the VSL3 in). I believe my attempts caused a fissure which still hasn't healed. She wasn't that 'practical' in my opinion. The $700 cash/cc payment//no insurance accepted per visit was another issue.
The book she referenced was Dr. Martin Blaser's, "The Missing Microbes". I know she just finished her own second book.
I put up a post in 2014 on my experiences with her FODMAP protocol. The theories are inline with what I'm trying recently.
I am grateful that you have had success with this!!!