Skip to main content

Advice needed :(

My fiance was diagnosed with UC when he was 16. I met him when he was 22 and at the time (other than the millions of pills he took) his life seemed pretty normal. He didn't have a ton of flare ups, and if he did get one it was easily controlled. Last February (2013) he had a horrible flare up that they couldn't get under control. He decided that he didn't want to use Humira/Remicade with the side affects and low success rate, so instead he decided to have j-pouch surgery. Before his first surgery (July 2013) he had lost 40 lbs in about 5-6 months. With the temp ostomy, life got so much better - he was able to have a life again that didn't revolve around laying on the couch and in the bathroom. He had his take down surgery (October 2013) and everything seemed to go well. We started planning our wedding and bought a house. However, about a month or two ago life has gotten rough again and we now are thinking about postponing the wedding. He is in horrible pain and nobody can seem to help us. The surgeon has been trying different medications to get the gas under control but none of it seems to be helping. He continues to lose weight (down to about 110lbs and is 5.8). I worry about him constantly and you can tell he is extremely depressed. I am at a complete loss - I am here for him 100% but like he says "I can't understand the pain" Between worrying and lack of sleep I am completely at a loss Frowner Any advice would be greatly appreciated!!
Original Post
Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×