Activity

Reply by Karenchase

Like I said, a lot of these symptoms seem to be characteristic of both the condition (inflammation in the pouch and consequent...
Karenchase

Reply by Leannern

Thanks for getting back to me! I had a scope 3 weeks ago and my GI said it was crohn's. I questioned the diagnosis as I have done some...
Leannern

Reply by jeane

Leanne, i am sorry about your diagnosis . Let me add however that I’ve always been skeptical of the now Crohns diagnosis. Have they...

Reply by Scott F

It can be very hard to figure out side effects when you combine drugs. Effective treatments are very, very precious when dealing with...
Scott F

Reply by Scott F

I’ve been happy on continuous antibiotics. Ideally your would rotate between three different ones every few weeks. Every treatment has...
Scott F

Reply by Pouchomarx

I get nausea sometimes and I get intermittent pains all over my abdomen but ive been having that since all my surgeries. I don't know...
Pouchomarx

Reply by skn69

I had mine for years...and I mean years...over 20 and no one care until I was screaming in pain and doubled over...then they did lap...
skn69

Reply by Karenchase

I have had a chronic low-level pouchitis infection for the past year or so. I've been doing repeated courses of cipro/flagyl, at a lower...
Karenchase

Reply by Pouchomarx

how long ago was that? I asked the doc to let me know if the size or number increased since it stated this just over 2 years ago. I...
Pouchomarx

Reply by LORI726

I have gallstones too that showed up an MRI or CT scan (can’t remember which). No one said a thing about them. I figure no one cares...
LORI726

Reply by Marty3112

I can empathise completely! I take loperamide and also avoid fatty/rich foods avoid high fibre and I am currently on antibiotics for...

Reply by Winterberry

After my reversal I used a plastic travel bidet bottle that I bought on Amazon for $14. It saved me. It's called the Brondel travel...
Winterberry

Reply by skn69

Funnily enough, you manage and find tricks to make it work...I don't think that I have worked this much in ages including 1 week out of...
skn69

Reply by TE Marie

Dang it Sharon, when you do something you do it with gusto! I'm glad you finally got testing done. I know a guy that fell off of a roof,...
TE Marie

Reply by skn69

Thanks Janet, Doing my best...being more careful since I got the diagnosis...just realized exactly what I have been doing with 2 broken...
skn69

Reply by Scott F

A well-crafted pouch with a good blood supply will generally last a lifetime. Like any body part, things can go wrong with it, just like...
Scott F

Reply by skn69

I don't see why you should lose your pouch due to age...it is not a given that it will happen, not any more than any other medical...
skn69

Reply by Bubba1028

I understand what your mean. I already shared so much with friends and family that when another complication comes up or something in...

Reply by JLH

i refer to falling as free bone density tests, and indeed best way to know, although rather inconvenient when breaking something.

Reply by Bobish

What position do you sleep in? Sleeping on your belly allows gravity to assist. Sleeping on your side is better than sleeping on your...
Bobish

Reply by skn69

I just had the CT yesterday and it is official, Both elbows are broken! Yup, when I do things, I do them right. They don't cast elbows,...
skn69

Reply by EvoX23

Just an update, I had surgery a month ago to fix this issue. It was a very difficult diagnosis where not a single diagnostic test could...
EvoX23

Reply by CTB23

I used Lomotil 2 pills 4 times a day when I had my ileostomy. With my j-pouch, I rarely use it. It never occurred to me that I would be...

Reply by Scott F

Hi, Jess. I’m not sure what you believe about “becoming dependent on Lomotil,” but for now I’d suggest that you use it. Lomotil is much...
Scott F

Reply by steven phelps

id like to know how well it works? i have found very little that helps. i have read that codeine is sued in euprop. i had a script for...

Reply by Scott F

Its main effect is to reduce the frequency of pouchitis. It’s very hard to tell if that’s actually happening, unless you are *very*...
Scott F

Reply by katenet

I take about 3 tsp per day but I am not sure if it's really doing anything !

Reply by Bob Breen

Hello everyone, its been a long time posting on this site. Its true that once most of the problems are gone the less you return to this...
Bob Breen

Reply by JLH

how frustrating to have this last and last. hold onto your great humor! big cyber hug, janet

Reply by LaurieF

Kind of a shift in the thread but i just read this in a link about strictures. Naproxin/Aleve as a possible cause of stricture is what...
LaurieF

Reply by TE Marie

Wow you have really been through it. I hope you're body is ready to get to feeling better. It sounds like you are in one of those dreams...
TE Marie

Reply by lovethatgrey

Re: PSC/UC
Hi MISSCARISS . You and my husband's situation sounds very similar. He also has been suffering from UC for the past 9 years. Nothing has...
lovethatgrey

Reply by LaurieF

Thats a scenario doc threw out there before he saw the actual problem. I dont know why this doesnt seem to be an option now? Maybe too...
LaurieF
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