Activity

Reply by LauraLee

Hi, I can’t remember the last I posted something but it was long time ago. Maybe over a year, full of all kinds of issues with my...
LauraLee

Reply by CTBarrister

I had one post op (too much narcotics), NG tube was forcibly inserted by doctor who manhandled me (I resisted), but he did an amazingly...
CTBarrister

Reply by Bubba1028

I had major gas pains the first few months too. Someone suggested Beano and I take that before lunch and dinner each day. It seems to...

Reply by Native

That first blast of gas i may actually dance down the halls. I really sort of wish they would have kept in the ng tube until just in...
Native

Reply by Scott F

Mine lasted a very long ten days. It’s very uncomfortable, and it seems like it will go on forever, but then it resolves.
Scott F

Reply by JJA

In case anyone reads this old post, I went off Immuran for 2 weeks. Symptoms kicked up, which wasn't great, but white count improved.

Reply by JJA

In the 90s when I was in college, I got a letter from my doc (I missed fall semester due to colon/pouch surgeries) that I needed easier...

Reply by Shavon

I’m only about 5 months post-op so I’m not an expert but I definitely remember how I felt at 2 months out. - I didn’t really start...

Reply by dgs

Actually my medical care was excellent. The K-pouch was at the end of its being experimental, as J-pouches were just being introduced as...

Reply by JLH

to you 40 yearers--i was reflecting on what it must have been like, in the 70s, to go ahead with this surgery. medical care was...

Reply by katenet

I used everything I could find: lidocaine and a hot bath to get a belladonna/opium suppository in then spasms went nuts so 5 mg of...

Reply by Bubba1028

Just seeing this now. I’m sorry i don’t have suggestions for you. How did u make out? Is it any better??

Reply by Bubba1028

I work at a university and help students with accomodarions like this. You should get documentation from the doctor and work with...

Reply by Scott F

Richard- Antibiotics currently work very well for me, though I had to step up to combination therapy (Cipro + Flagyl) a few years ago to...
Scott F

Reply by CTBarrister

Momma, I attended the University of Connecticut 1981-1985 when my ulcerative colitis was at its peak ((although my colectomy didn’t...
CTBarrister

Reply by dgs

I also am grateful for all who contribute to this site for all the info and support, we're still the 'minority' of ileostomates and to...

Reply by averyo99

I'm in college and I'm in a dorm that has a bathroom in my room that I share with two other girls, so this might be a little different...

Reply by JLH

thank you for the time duration encouragement!! wow, 40 years i'm just 2 1/2 years out of k pouch surgery. so far--aside from a recent...

Reply by chiromancer

I tried leaving the pouch in, it didnt work for me. The stoma was an end illeo but the tension on it from the remaining pouch pulled it,...

New Member

Reply by Aimc

An ultra sound,ct scan,and mri are all used to detect a gallon bladder problems. Good luck hope you get an answer soon
Aimc

Reply by JanW2

Hi All, To Tommy, my great sympathy, hope you are healing. Kpouch is so misunderstood. I got mine last July by Dr Dietz at University...

Reply by Scott F

A gall bladder assessment usually starts with a simple ultrasound study, looking for stones and dilated ducts. Stones alone don’t prove...
Scott F

Reply by KonaBlue561

Thanks for your reply Bubba, when did your attacks occur? I'm reading it's common that the attacks happen after a meal, especially a...

Reply by Bubba1028

Aww this is wonderful news! My husband and I are trying right now- had my takedown last fall. Only been trying for 3 months and nothing...

Reply by Bubba1028

I think it sounds like a gall bladder attack. I felt like i was dying when I had mine (had to have it out eventually), and it would come...

Reply by skn69

I am so, so sorry...this is awful...not the loss of the k pouch but everything that you are going through with your husband...I am sure...
skn69

New Member

Reply by Msshoe

Boda, thanks for the information. I will be taking Dupixent on Monday which I hope will speed up the the cure of the skin lesions after...
Msshoe

Reply by JLH

what a frightening experience and I’m so sorry for the frustrations and of course needing to settle for less than what one expects and...

Reply by Tommy

We have had a horrendous couple weeks. My husband Tom, who has lost his eyesight, was having trouble passing his catheter. He has had...

Reply by mzmcgee1232

Wow I been eating like 6 twizzlers a day... an was wandering why I kept seeing traces of red.... lol... Thank you for the input... I'm...
mzmcgee1232

Reply by KonaBlue561

My surgeon wanted me to go to the ER to run some tests during the last episode and I couldn’t make it. My GI and my surgeon work very...

Reply by Scott F

I think you may be expecting more of an X-ray than it will be able to deliver. For that matter you may be expecting more of your surgeon...
Scott F

Reply by Tom Havenner

I believe that was a great idea the next time I get pouchitis I think As I feel it coming on is to get a CBC blood test to see the level...

Reply by skn69

Thanks Janet, What you describe is a peristomal hernia...a hernia close to or right over the stoma area...causes it to no longer be held...
skn69

Reply by skn69

It happens Rosie, It is usually nothing...you nick or scrape something inside and then there is a copious amount of blood for a few...
skn69

Reply by skn69

Amazing and a lesson to one and all...When God closes 1 door there is always a window opened somewhere else...thank you Sharon
skn69

Reply by skn69

Beware of blueberries too...makes it green...vegetable chips (beetroot, purple carrots etc) they give you all sorts of colors and any...
skn69

Reply by KonaBlue561

Thanks for your reply Scott. My first incident with this when I went to the ER, the pain had gone away by the time I was checked in and...

Reply by Scott F

Kona, it could be a blockage, but the fever from a blockage usually takes longer to develop, and is often associated with a severe...
Scott F

Reply by Aimc

Thanks for the reply Jeffsmom. This fistula is in the lower left side. That's all is said in the report from the barium enema x-ray. Man...
Aimc

New Member

Reply by Jeffsmom

Hi Amy. Yes it is fixable. I’m not sure what kind of fistula this is, but my son had a fistula from his pouch to a huge collection in...
Jeffsmom

Reply by Johnnycomelately

Thanks Scott for your concern - we continue to monitor my condition. Rifaximin will not be absorbed through the pouch lining, but it is...

Reply by Bobish

I just ate a beetroot salad.... Will try to remember that when the panic sets in a few hours time lol
Bobish

Reply by mzmcgee1232

I do the same thing...now i cant to see their faces when i tell them about the cereal lol...thanks again
mzmcgee1232

Reply by Laraweb

Thanks Scott appreciate the reply. hopefully the doctor will help me figure out the cause rather than just treat it again.

Reply by Still Standing

You are so welcome. I even warn my kids who have “normal “ guts that this might happen 😊 The joy of colorful food!

Reply by Scott F

Sometimes an abscess can recur because it didn’t fully resolve when it drained. Sometimes it may recur because is has a connection to...
Scott F

Reply by Gary54cal

Agreed . I eat more chicken than meat. Have difficult days when eating meat especially if not good quality. Also have mashed potatoes...
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