Activity

Reply by MChi

I buy my vsl online at https://shop.vsl3.com/vsl3-c2.aspx, with a $5 off coupon when using the promo code "DOCTOR". But, if that isn't...

Reply by MChi

It could be adjusting to the new pouch, but also, it might be good to keep a food journal to figure out what foods might prompt you...

Reply by Bubba1028

Sorry to hear you’re having a tough time. I usually cold in general- no worse with the winter weather. I use these rice heat packs- you...

Reply by Pals

Another thing you can try before the prescrition is calmoseptine ointment. That you can buy at Walgreens. Most of the people in the...

Reply by Pals

There is a cream with hydrocortisone and lidocaine mixed. Prescrition only. That should help. As your doctor he should know. If not the...

Reply by ks1905

Remicade worked great for me when I had UC, it worked for almost 5 years. There are more blood tests for Remicade currently then when I...

Reply by Patricia Walker

Yes a hair analysis reveals so much. I became very ill around the age of 35. ME type symptoms. No help from GPs. Got myself to York here...
Patricia Walker

Reply by skn69

Initially my surgeon said to me that if I am gaining weight than I am absorbing...That was the 70's and we have come a long way since. I...
skn69

Reply by skn69

Sam, We are all different and are all coming from different places and diseases. Not everyone has UC or Crohns...some have the whole...
skn69

Reply by N Fos

I feel like it was all the different meds used to try to fix my uc problems that caused a lot of my fatigue and joint pain/aches. I had...

Reply by ytcrockpot

Im In the same boat, although I’ve found electrolyte water helps, such brands as propel & core. Also Drip Drop from Amazon or drug ...

Reply by Patricia Walker

Yes I feel lack of absorption compromises our ability to maintain a balanced benefit from many of out diets. I take a good quality multi...
Patricia Walker

Reply by JLH

great list sharon! i've got fast digestive times as well. do any of you think nutriment absorption is compromised? and if so, how to...

Reply by Scott F

Fatigue is pretty common, and often unrelated to one’s J-pouch. Getting my sleep apnea under better control made a huge difference in my...
Scott F

Reply by Bobish

Re: Fruit
Personally I find too many acidic fruits (like the berries) give me savage butt burn. Also be cautious about mixing veg (celery out...
Bobish

Reply by N Fos

20 yrs post-takedown and I go about 4-5 times within 24 hr period. More if I eat acidic foods or fruits. I don't take immodium unless...

Reply by N Fos

Long time jpoucher....I finally had to have an incisional hernia repaired about 8 yrs ago...about 10 yrs after my last take down surgery...

Reply by N Fos

I had uc and have now had a jpouch for about 20 yrs. I deal constantly with fatigue and overall bone/muscle/joint pain.....oh yeah, and...

Reply by skn69

Re: Fruit
I'm not a 'mixer' of fruits with other food groups (no dairy, proteins...)...I believe that they digest better on their own than they do...
skn69

Reply by Jeff D

Hi Bill, Who are your doctors at HUP? My colorectal surgeon is Dr. Mahmoud and she's fantastic. Jeff

Reply by Linzalisha

Re: Fruit
Thank you Sharon. Will give it a go x
Linzalisha

Reply by skn69

Re: Fruit
A hand-held immersion blender. My favorite toy and kitchen tool. Doesn't matter what the fruit is or the fruit combo...just buzz it for...
skn69

Reply by Still Standing

Re: Fruit
I love fruit. My favorite way to eat them is blending them with Almond milk, protein powder, chia, and flax seeds for a morning...

Reply by skn69

Reducing anything will generally cause weight loss if you don't increase the rest. Meats, especially non-organic, commercial meats are...
skn69

Reply by TE Marie

BMARIE, She referred you to one of the best places to go with j-pouch problems. I've always thought a good doctor is one that knows when...
TE Marie

Reply by BMarie94

Thanks Te Marie, the ileo is still a choice for me as well. The specialist who seen me here in Michigan and referred me to Cleveland...

Reply by BMarie94

Thanks Richard, I still can’t believe I’ve done it this long. I guess looking back I never realized what should be “normal” for a J...

Reply by Pouchomarx

I would appreciate that, it was a risk that was discussed with a pouch redo with mucousectomy. Like I said its minimal, I think some of...
Pouchomarx

Reply by Ljz

Poucho, I still have my first pouch, but had the mucousectomy 1.5 years ago along with pouch advancement in a surgery where I expected...

Reply by Jan Dollar

Re: Travel
I’ve been on several European trips since my j-pouch surgery. It is a 9-11 hour flight from San Francisco for me, usually with a...
Jan Dollar

Reply by TE Marie

Sorry to hear you are still in agony with this. I went back to an end ileo and my life is much better. Would I rather not have an ileo?
TE Marie

Reply by Mysticobra

I couldn't live that way. And I didn't. I didn't have a prolapse but two years of j pouch misery was enough. If you've gone six years...
Mysticobra

Reply by Kalyn

Oh and as a short term solution, though you may already be doing this of course, baths! That was the only thing that provided immediate...
Kalyn

Reply by Kalyn

Depending on what digestive enzymes you have (or rather how far you want to stretch the bottle you bought) I don't think it's a bad idea...
Kalyn

Reply by BMarie94

About half an inch, and since then even more. It’s about the size of an egg, but it’s giving me problems with using the bathroom. It...

Reply by Pouchomarx

I am on my second jpouch for 2 years now, I experience some minor leakage sometimes. I always have a folded up square of tp shoved up...
Pouchomarx

Reply by JHendrix

As an update, I had a couple of stoma revisions and stayed with the diverting ileostomy for a year and 8 months. Investigation under...

Reply by Pouchomarx

In your original post you stated a protrusion, how much was actually protruded and what did you do for it, just shove it back in? Did it...
Pouchomarx

Reply by JHendrix

"Careful what you wish for!" I had been worried about the lack of bowel activity and now it's the excess activity. I feel like I have to...

Reply by analab

CANLAFRE , my dad's liquid is mostly clear. But he does get a bit of brown liquid when he sits on hard surfaces. His liquid mostly gets...

Reply by BMarie94

Friendly update! So almost a year later, and the problem getting much worse I finally sought help from a specialist because none of my...

Reply by BMarie94

So I did my test and it honestly wasn’t that bad. They proved exactly as to what I’m dealing with which just gives me some sanity...

Reply by canlafre

I am so glad you posted this. In having the same issue, but my drainage is brown. The more I move around the more mine leaks. Does your...

Reply by vince66

thanks for the reply - received J pouch at age 50 (I'm now 66) in 2 step procedure and also had my gall bladder removed in 2008 - have...
Copyright © 2015 The J-Pouch Group. All rights reserved.
×
×
×
×